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PMID: 17108760 Published · ppublish English

Risk communication in completed series of breast cancer genetic counseling visits.

Pieterse Arwen H, van Dulmen Sandra, van Dijk Sandra, Bensing Jozien M, Ausems Margreet G E M

Abstract

There is no consensus on how best to communicate risk in breast cancer genetic counseling. We studied risk communication in completed series of counseling visits and assessed associations with counselees' postcounseling risk perception and satisfaction.,Pre- and postcounseling questionnaires and videorecordings of all visits were available for 51 affected and unaffected women from families with no known BRCA1/2 mutation, who fulfilled criteria for DNA testing. We developed a checklist for assessing risk communication and counselors' behaviors.,General risks were mainly communicated in initial visits, while counselee-specific risks were discussed mainly in concluding visits. The risks discussed most often were conveyed only numerically or qualitatively, and most were only stated positively or negatively. Counselors regularly helped counselees to understand the information, but seldom built on counselees' pre-existing perspective. Counselees' breast cancer risk perception after counseling was unrelated to whether this risk had been explicitly stated. The number of general risks discussed was negatively associated with counselees' satisfaction about counseling.,Findings suggest that counselors' authority prevails over mutuality with individual counselees, in their communication about risks.

Article Info
Journal
Genetics in medicine : official journal of the American College of Medical Genetics
Abbr.
Genet Med
Published
2007-02-01
Indexed
2006-11-19
Updated
2015-11-19
Language
English
Country/Region
United States
NLM ID
9815831
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